Ice Bucket Challenge Co-Creator Patrick Quinn Dies at Age 37

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
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Ice Bucket Challenge Co-Creator Patrick Quinn Dies at Age 37

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37, seven years after his diagnosis, supporters announced on Facebook.

Quinn, who was born and grew up in Yonkers, New York, was co-founder of the campaign that raised more than $220 million for medical research into amyotrophic lateral sclerosis, more commonly known as Lou Gehrig’s Disease, his Facebook page said.

He was diagnosed with ALS on March 8, 2013, according to his Facebook page.

“It is with great sadness that we must share the passing of Patrick early this morning,” his supporters said on Facebook. “We will always remember him for his inspiration and courage in his tireless fight against ALS.”

Condolences to the Quinn family poured in on social media, with many expressing gratitude for the spotlight he drew to the disease and the need to find a cure.

The Ice Bucket Challenge went viral on social media in the summer of 2014, when people around the world posted videos and photos of themselves dumping buckets of ice water on their heads and challenging others to do the same while urging donations for ALS research.

Roughly 12,000 to 15,000 Americans may have ALS, according to the US Centers for Disease Control and Prevention. An estimated 5% to 10% of ALS cases are believed to be hereditary, but the cause is unknown and there is no cure.

Among Quinn’s many honors for raising awareness of ALS and promoting research was a nomination with fellow ALS activist Peter Frates as “Person of the Year” by Time magazine. Frates died last year at age 34, seven years after his diagnosis.



French Scientists Find New Blood Type in Guadeloupe Woman

A French woman from the Caribbean island of Guadeloupe has been identified as the only known carrier of a new blood type. (AFP)
A French woman from the Caribbean island of Guadeloupe has been identified as the only known carrier of a new blood type. (AFP)
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French Scientists Find New Blood Type in Guadeloupe Woman

A French woman from the Caribbean island of Guadeloupe has been identified as the only known carrier of a new blood type. (AFP)
A French woman from the Caribbean island of Guadeloupe has been identified as the only known carrier of a new blood type. (AFP)

A French woman from the Caribbean island of Guadeloupe has been identified as the only known carrier of a new blood type, dubbed "Gwada negative," France's blood supply agency has announced.

The announcement was made 15 years after researchers received a blood sample from a patient who was undergoing routine tests ahead of surgery, the French Blood Establishment (EFS) said on Friday.

"The EFS has just discovered the 48th blood group system in the world!" the agency said in a statement on social network LinkedIn.

"This discovery was officially recognized in early June in Milan by the International Society of Blood Transfusion (ISBT)."

The scientific association had until now recognized 47 blood group systems.

Thierry Peyrard, a medical biologist at the EFS involved in the discovery, told AFP that a "very unusual" antibody was first found in the patient in 2011.

However, resources at the time did not allow for further research, he added.

Scientists were finally able to unravel the mystery in 2019 thanks to "high-throughput DNA sequencing", which highlighted a genetic mutation, Peyrard said.

The patient, who was 54 at the time and lived in Paris, was undergoing routine tests before surgery when the unknown antibody was detected, Peyrard said.

This woman "is undoubtedly the only known case in the world," said the expert.

"She is the only person in the world who is compatible with herself," he said.

Peyrard said the woman inherited the blood type from her father and mother, who each had the mutated gene.

The name "Gwada negative", which refers to the patient's origins and "sounds good in all languages", has been popular with the experts, said Peyrard.

The ABO blood group system was first discovered in the early 1900s. Thanks to DNA sequencing, the discovery of new blood groups has accelerated in recent years.

Peyrard and colleagues are now hoping to find other people with the same blood group.

"Discovering new blood groups means offering patients with rare blood types a better level of care," the EFS said.