Ice Bucket Challenge Co-Creator Patrick Quinn Dies at Age 37

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
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Ice Bucket Challenge Co-Creator Patrick Quinn Dies at Age 37

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)
Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37. (Reuters)

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37, seven years after his diagnosis, supporters announced on Facebook.

Quinn, who was born and grew up in Yonkers, New York, was co-founder of the campaign that raised more than $220 million for medical research into amyotrophic lateral sclerosis, more commonly known as Lou Gehrig’s Disease, his Facebook page said.

He was diagnosed with ALS on March 8, 2013, according to his Facebook page.

“It is with great sadness that we must share the passing of Patrick early this morning,” his supporters said on Facebook. “We will always remember him for his inspiration and courage in his tireless fight against ALS.”

Condolences to the Quinn family poured in on social media, with many expressing gratitude for the spotlight he drew to the disease and the need to find a cure.

The Ice Bucket Challenge went viral on social media in the summer of 2014, when people around the world posted videos and photos of themselves dumping buckets of ice water on their heads and challenging others to do the same while urging donations for ALS research.

Roughly 12,000 to 15,000 Americans may have ALS, according to the US Centers for Disease Control and Prevention. An estimated 5% to 10% of ALS cases are believed to be hereditary, but the cause is unknown and there is no cure.

Among Quinn’s many honors for raising awareness of ALS and promoting research was a nomination with fellow ALS activist Peter Frates as “Person of the Year” by Time magazine. Frates died last year at age 34, seven years after his diagnosis.



Dangerous Dreams: Inside Internet's 'Sleepmaxxing' Craze

The trend of 'sleepmaxxing,' featuring mouth taping, eye masks and other bedroom practices with unproven health effects, is being promoted on social media by online influencers. Drew ANGERER / AFP
The trend of 'sleepmaxxing,' featuring mouth taping, eye masks and other bedroom practices with unproven health effects, is being promoted on social media by online influencers. Drew ANGERER / AFP
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Dangerous Dreams: Inside Internet's 'Sleepmaxxing' Craze

The trend of 'sleepmaxxing,' featuring mouth taping, eye masks and other bedroom practices with unproven health effects, is being promoted on social media by online influencers. Drew ANGERER / AFP
The trend of 'sleepmaxxing,' featuring mouth taping, eye masks and other bedroom practices with unproven health effects, is being promoted on social media by online influencers. Drew ANGERER / AFP

From mouth taping to rope-assisted neck swinging, a viral social media trend is promoting extreme bedtime routines that claim to deliver perfect sleep -- despite scant medical evidence and potential safety risks.

Influencers on platforms including TikTok and X are fueling a growing wellness obsession popularly known as "sleepmaxxing," a catch-all term for activities and products aimed at optimizing sleep quality, AFP reported.

The explosive rise of the trend -- generating tens of millions of posts -- underscores social media's power to legitimize unproven health practices, particularly as tech platforms scale back content moderation.

One so-called insomnia cure involves people hanging by their necks with ropes or belts and swinging their bodies in the air.

"Those who try it claim their sleep problems have significantly improved," said one clip on X that racked up more than 11 million views.

Experts have raised alarm about the trick, following a Chinese state broadcaster's report that attributed at least one fatality in China last year to a similar "neck hanging" routine.

Such sleepmaxxing techniques are "ridiculous, potentially harmful, and evidence-free," Timothy Caulfield, a misinformation expert from the University of Alberta in Canada, told AFP.

"It is a good example of how social media can normalize the absurd."

Another popular practice is taping of the mouth for sleep, promoted as a way to encourage nasal breathing. Influencers claim it offers broad benefits, from better sleep and improved oral health to reduced snoring.

But a report from George Washington University found that most of these claims were not supported by medical research.

Experts have also warned the practice could be dangerous, particularly for those suffering from sleep apnea, a condition that disrupts breathing during sleep.

Other unfounded tricks touted by sleepmaxxing influencers include wearing blue- or red-tinted glasses, using weighted blankets, and eating two kiwis just before bed.

'Damaging'

"My concern with the 'sleepmaxxing' trend -- particularly as it's presented on platforms like TikTok -- is that much of the advice being shared can be actively unhelpful, even damaging, for people struggling with real sleep issues," Kathryn Pinkham, a Britain-based insomnia specialist, told AFP.

"While some of these tips might be harmless for people who generally sleep well, they can increase pressure and anxiety for those dealing with chronic insomnia or other persistent sleep problems."

While sound and sufficient sleep is considered a cornerstone of good health, experts warn that the trend may be contributing to orthosomnia, an obsessive preoccupation with achieving perfect sleep.

"The pressure to get perfect sleep is embedded in the sleepmaxxing culture," said Eric Zhou of Harvard Medical School.

"While prioritizing restful sleep is commendable, setting perfection as your goal is problematic. Even good sleepers vary from night to night."

Pinkham added that poor sleep was often fueled by the "anxiety to fix it," a fact largely unacknowledged by sleepmaxxing influencers.

"The more we try to control sleep with hacks or rigid routines, the more vigilant and stressed we become -- paradoxically making sleep harder," Pinkham said.

Beauty over health

Many sleepmaxxing posts focus on enhancing physical appearance rather than improving health, reflecting an overlap with "looksmaxxing" –- another online trend that encourages unproven and sometimes dangerous techniques to boost sexual appeal.

Some sleepmaxxing influencers have sought to profit from the trend's growing popularity, promoting products such as mouth tapes, sleep-enhancing drink powders, and "sleepmax gummies" containing melatonin.

That may be in violation of legal norms in some countries like Britain, where melatonin is available only as a prescription drug.

The American Academy of Sleep Medicine has recommended against using melatonin to treat insomnia in adults, citing inconsistent medical evidence regarding its effectiveness.

Some medical experts also caution about the impact of the placebo effect on insomnia patients using sleep medication -- when people report real improvement after taking a fake or nonexistent treatment because of their beliefs.

"Many of these tips come from non-experts and aren't grounded in clinical evidence," said Pinkham.

"For people with genuine sleep issues, this kind of advice often adds pressure rather than relief."