Celine Dion Offers a Portrait of Resilience in New Documentary

 Canadian singer Celine Dion attends the New York special screening of the documentary film "I Am: Celine Dion" at Alice Tully Hall in New York City on June 17, 2024. (AFP)
Canadian singer Celine Dion attends the New York special screening of the documentary film "I Am: Celine Dion" at Alice Tully Hall in New York City on June 17, 2024. (AFP)
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Celine Dion Offers a Portrait of Resilience in New Documentary

 Canadian singer Celine Dion attends the New York special screening of the documentary film "I Am: Celine Dion" at Alice Tully Hall in New York City on June 17, 2024. (AFP)
Canadian singer Celine Dion attends the New York special screening of the documentary film "I Am: Celine Dion" at Alice Tully Hall in New York City on June 17, 2024. (AFP)

Music legend Celine Dion vowed Monday her "passion as a performer will never disappear," despite health struggles she says are still just a small part of her monumental story.

"I'm not dead," the singer told AFP on the red carpet ahead of the premiere of the new documentary "I Am: Celine Dion" that focuses on her soaring career and more recent struggles with a rare neurological disorder that has hampered her ability to perform.

"When life imposes something on you, you have two options. You deal with it or you don't want to deal with it," Dion said, calling her decision to speak out about her condition in the documentary both "the greatest gift and the greatest responsibility."

"It's not going to go away," she said of the disorder. "I'm going to have to deal with this. And I am."

The 56-year-old first disclosed in December 2022 that she had been diagnosed with Stiff Person Syndrome, a progressive autoimmune disorder with no cure.

Treatment can help alleviate symptoms of the condition that can cause stiff muscles in the torso, arms and legs as well as trigger severe spasms.

"The show will still go on," she promised, but said it was important to be honest about the struggle.

Irene Taylor, the Academy Award-nominated director behind the film, told AFP that Dion's one ask was to be able to tell her own story, in her own words.

"Would that be possible? Instead of other people talking about me?" she recalls the superstar requesting.

"That was like music to my ears as a storyteller," Taylor said.

"She just opened up and was very authentic ... in her joy and also in her suffering."

The documentary will begin streaming globally on June 25 on Prime Video.

Dion was forced to cancel a string of shows scheduled for 2023 and 2024, saying she was not strong enough to tour.

She made a surprise appearance earlier this year at the Grammy Awards, presenting the Album of the Year award to Taylor Swift.

Dion has sold more than 250 million albums during her decades-long career.

The Quebec-born star's "Courage World Tour" began in 2019, and Dion had completed 52 shows before the Covid-19 pandemic put the remainder on hold.



Javier Bardem on Gaza: ‘We Cannot Remain Indifferent’ in Call for Hostage Release and Ceasefire

Javier Bardem appears at the 94th Academy Awards nominees luncheon in Los Angeles on March 7, 2022. (AP)
Javier Bardem appears at the 94th Academy Awards nominees luncheon in Los Angeles on March 7, 2022. (AP)
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Javier Bardem on Gaza: ‘We Cannot Remain Indifferent’ in Call for Hostage Release and Ceasefire

Javier Bardem appears at the 94th Academy Awards nominees luncheon in Los Angeles on March 7, 2022. (AP)
Javier Bardem appears at the 94th Academy Awards nominees luncheon in Los Angeles on March 7, 2022. (AP)

Javier Bardem was no longer comfortable being silent on Gaza.

The Spanish actor spoke out about the Israeli-Hamas conflict upon accepting an award at the San Sebastian Film Festival last week. In his nuanced remarks, Bardem condemned the Hamas attacks as well as the "massive punishment that the Palestinian population is enduring."

He called for immediate ceasefire, Hamas’ release of hostages and for Israeli Prime Minister Benjamin Netanyahu and the Hamas leaders — some of whom are now dead — who ordered the Oct. 7 attacks to be judged by the International Criminal Court.

In an interview with The Associated Press, Bardem explained why he chose to speak out.

"I believe that we can and must help bring peace. If we take a different approach, then we will get different results," Bardem told the AP, speaking prior to Iran’s attack on Israel Tuesday. "The security and prosperity of Israel and the health and future of a free Palestine will only be possible through a culture of peace, coexistence and respect."

Israel’s offensive has already killed over 40,000 Palestinians, according to Gaza health officials, displaced the vast majority of Gaza’s 2.3 million residents and destroyed much of the impoverished territory. Palestinian fighters are still holding some 110 hostages captured in the Oct. 7 attack that started the war, in which they killed around 1,200 people, mostly civilians. Around a third of the 110 are already dead, according to Israeli authorities.

The war has drawn sharp divisions in Hollywood over the past year, where public support of Israel or Palestine has provoked backlash and bullying, with accusations of antisemitism and Islamophobia, and cost people jobs. Even silence has had its consequences. The #blockout2024 movement pressured celebrities who hadn’t said anything — or enough — to take a stand.

"Why now?" Bardem said. "Because to continue to stall negotiations and return to the previous status quo, as they say, or as we are seeing now, embark on a race to further violations of international law would be to perpetuate the war and eventually lead us off a cliff."

Bardem stressed that while antisemitism and Islamophobia are real and serious problems in the US, Europe and beyond, that the terms are being used to divert attention away from the "legitimate right to criticize the actions of the Israeli government and of Hamas.

"We’re witnessing crimes against human rights, crimes under international law, such as, for example, the banning of food, water, medicines, electricity, using, as UNICEF says, war against children and the trauma that’s being created for generations," Bardem said. "We cannot remain indifferent to that."

The Oscar-winner, who was born in the Canary Islands, has spoken up on global issues before, signing an open letter calling for peace during a 2014 conflict between Israel and Hamas. He's also an environmental advocate, and spoke to the UN in 2019 about protecting the oceans.

"My mother educated me on the importance of treating all human beings equally, regardless of skin color, ethnicity, religion, nationality, socio and economic status, ability or sexuality," Bardem said. "Actions inform us and that alone interests me about people. That's why I have always been concerned about discrimination of any kind. That includes antisemitism and Islamophobia."

Bardem is married to Penélope Cruz, with whom he shares two children.

He said that beyond a fear that the framework of the Universal Declaration of Human Rights is in danger, he has seen the effects of the conflict up close and the promise of a different approach. Two of his close friends, one Israeli, one Palestinian, both lost daughters to violence years ago and have bonded together in their shared pain and desire to help create positive change.

Those fathers, Bassam Aramin and Rami Elhanan, are members of a nonprofit organization called The Parents Circle Families Forum that emphasizes reconciliation. They wrote a letter that Bardem shared: "What happened to us is like nuclear energy. You can use it for more destruction. Or you can use it to bring light. Losing your daughter is painful in both situations. But we love our life. We want to exist. So we use this pain to support change. To build bridges, not to dig graves."

Bardem added: "That’s what it should be about: Building bridges, not digging graves. That’s why it’s urgent and important."